Author: mcfadmin

Applying for Benefits for Pediatric Cancer

Introduction by Jonathan Agin, JD, Executive Director

As a childhood cancer nonprofit organization, the Max Cure Foundation (MCF) continually engages in the fight against this complex disease on multiple fronts.  Since MCF’s inception, we have collectively funded over $960,000 for research purposes.  Our team through, Richard Plotkin and Jonathan Agin, have effectively been engaged in working in Washington, DC to advocate for legislative and regulatory change.  And finally, but certainly one of our most important charges, is our family assistance program known as Roar Beyond Barriers (RBB).   (more…)

Jonathan Agin, JD, Executive Director’s Public Comments before the Pediatric Subcommittee of the Oncologic Drugs Advisory Committee (pedODAC) Meeting.


pedODAC with namesOn June 29, 2016, I was one of five individuals selected to present public comments at the Federal Drug Administration (FDA) pedODAC meeting in a special session dedicated to the pediatric brain tumor that took my daughter’s life,  (DIPG).   (more…)

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Food Stamps Should Be Redeemable Online

As American shopping shifts from the brick-and-mortar stores to online retail, and even groceries have innovated for 21st Century consumers, agencies such as the USDA should reconsider how to best serve their constituents under their WIC and SNAP programs.  (more…)

Youth Football Raises Money for Childhood Cancer

On May 21st and 22nd, 2016, The Max Cure Foundation and Casa Grande Union High School joined forces to host the first Cactus Classic Charity Football Tournament.

Thanks to the support of 19 Arizona youth football teams and their families, the tournament raised over $11,000 for the Arizona Roar Beyond Barriers program which provides financial support to four families in need who have a child battling cancer as well as the high school’s athletic program. (more…)

kennedy moonshotOn September 12, 1962 President Kennedy delivered his famous “moonshot” speech. Declaring that as a nation, we would focus vast resources to landing a man on the moon and safely bringing that man back to earth.  (more…)

The Max Cure Foundation was formed after the diagnosis of Max, at age 4 with cancer (Max is currently 12 years old, a 9 year childhood cancer survivor). Max Cure Foundation initiated a fundraiser for the family of the active duty U.S. Navy SEAL whose 4 year old daughter was diagnosed with cancer in August, 2015.  (more…)

From left to right:  Ken Moch (former CEO, Chimerix); Richard Plotkin (Max Cure), Debra Birnkrant (FDA), Brooke Gladstone (NPR, Moderator), Nancy Goodman (KidsvCancer), Meg Tirrell  (CNBC)

On October 28, 2015, Richard Plotkin appeared as a panelist at a two-day colloquium at New York Academy of Science sponsored by NYU School of Medicine, NYU Langone Medical Center, and Johnson & Johnson.  The subject of the program is identified as, “Pre-Approval Access: Can Compassion, Business, and Medicine Coexist?”   (more…)

You are brought into a small room: a doctor, a nurse, a social worker and you. The look on their faces is dire. You can feel the fear building; it is palpable. And then you hear the words I’m sorry, “your child has cancer.” This scenario repeats itself 43 times each day in the United States. In April 2008, my family heard those words about our 2-year-old daughter Alexis. Alexis fought against inoperable and terminal brain cancer for 33 months before passing away in January 2011. Similarly, in May 2007, David and Annemarie Plotkin heard these words about 4-year-old Max. Max now stands as a “poster child” for giving other families hope. (more…)

Author: Jonathan E. Agin, JD – Max Cure Foundation Executive Director

In a recent article written by Mathew Zachary entitled The End of Pediatric Cancer Research as We Know It, published on December 2, 2015, the argument is posed that as a society we overplay the death toll from childhood cancer in the United States and are not focusing on the bigger picture at this point: survivorship issues. Mr. Zachary, a young adult survivor of brain cancer, was diagnosed at age 21, and not in the pediatric age range of 0-19 years. He is the founder of Stupid Cancer(more…)

Progress in Action: Max Cure Foundation’s Contributions to the Immune Cell Laboratory at Memorial Sloan-Kettering Cancer Center

As the first Executive Director of the Max Cure Foundation, I set several lofty goals that will take significant time and effort to bring to fruition. In viewing the combined three-pronged mission of MCF, one of my biggest desires was to ensure that the funding MCF has provided to the Immune Cell Laboratory at Memorial Sloan Kettering Cancer Center was indeed money well spent.  (more…)