Sean Marriott is 7-years-old and the youngest of 3 children of Kelly Marriott and her ex-husband, Chris. Sean, with his brothers, was enjoying the summer on a family vacation at the beach, looking forward to returning to school in September. Today, he is spending his time at Children’s Hospital of Philadelphia (CHOP) interacting with doctors rather than with his brothers and friends. Kelly, a single mom, instead of enjoying the time with her children, is facing a parent’s worst nightmare, a child with cancer. (more…)
Executive Director Jonathan Agin recently traveled to Seattle, Washington from June 12-14th to attend the annual meeting of the Coalition Against Childhood Cancer, also known as CAC2. CAC2 began to take shape in 2011 to bring many different stakeholders from the childhood cancer community together to collectively raise awareness, create collaborative efforts among member organizations and reduce duplication. Max Cure immediately saw the benefit of joining in this endeavor and today stands with close to 100 other childhood cancer related organizations and individual advocates working toward the same fight against childhood cancer.
During the meeting, members interact with some of the world’s top clinicians and researchers, members of the National Cancer Institute, FDA and the pharmaceutical industry to learn about new developments and how our collective work is impacting children with cancer. Additionally, there are specific meetings of separate interest groups such as research, advocacy and family support to name a few. Whereas Max Cure’s mission aligns with all of the interest groups, we have been most active with our participation in the research group. Since 2017 when Jonathan embarked upon reshaping Max Cure’s research direction through a bold and aggressive path, our participation in collaborative groups like the CAC2 research interest group have allowed us to further ensure that Max Cure’s research funding is laser focused. By helping to shape priorities used for collaboration by member organizations, we gain insight into how best to make research-funding decisions as well as create meaningful partnerships to accelerate results.
As part of Max Cure’s research efforts and participation in CAC2, we recently joined the International Cancer Research Partnership (ICRP). Through the ICRP, we are better able to determine that our research dollars are not duplicating other projects that are already well funded.
The Max Cure Foundation has always held the belief that through collaboration we can achieve greater results as a community. We feel strongly that our participation in groups like CAC2 provide the platform for our work to reach more support and create faster results as we continue to fight childhood cancer.
Executive Director Jonathan Agin Provides Public Comment Before the Food and Drug Administration
On June 20, 2018, Executive Director Jonathan Agin provided open public comments before the Food and Drug Administration (FDA) Pediatric Oncology Subcommittee of the Oncologic Drugs Advisory Committee on the issue of the implementation of the RACE for Children Act signed into law in August 2017. (more…)
The Max Cure Foundation was recently awarded a $10,000 grant from the Margaret and Peter Chang Foundation to help support families in the Scotch Plains, New Jersey area which is a township in Union County. Max Cure Foundation will use these grant funds to help families in these areas that experience emergency financial situations during the course of their child’s cancer treatment. (more…)
In 2017, the Max Cure Foundation was able to disburse $68,290 in financial assistance through the Roar Beyond Barriers Program. This covered a total of 53 families across 11 states, especially in the states of Pennsylvania, New York, and Ohio, the three of which made up 51% of the total population of the program. Of these funds, $1,050 was directly paid to families in emergency situations who requested help from our Emergency Grant Fund, which helps families in critical situations where utility service, rent, or other important bills require payment. (more…)
The Max Cure Foundation’s advocacy efforts round out our three-prong mission and sometimes place members of our executive team at the forefront of the childhood cancer community on certain issues. The pending legislation emotionally labeled as the Right to Try law that has been a string of individual bills introduced in Congress, and already the law in some states, is one such example of how Max Cure’s advocacy efforts are aimed at working to help children with cancer. (more…)
Max Cure Foundation recently awarded a grant to Maimonides Medical Center as a stop-gap measure that, under our psychosocial grant program, ensures that Child Life Services and support groups are funded at the hospital. In 2017 Max Cure received a grant from Love Your Melon, which sells apparel with the intent to support pediatric cancer foundations with the profit generated by sales of high-quality and great looking knit hats and other accessories.
Part of our grant proposal was to support a psychosocial initiative at Maimonides Medical Center, a busy treatment facility in Brooklyn, which just recently needed to scale back psychosocial support to meet budget needs at the hospital. With input from the Social Work and Child Life Services departments, Max Cure was able to ensure that families will continue to receive emotional and programming support to help fight against the stresses that pediatric cancer treatment brings to the child and their family. Everyone at Max Cure is rooting for the families and staff at Maimonides Medical Center to have a great 2018 and find ways to bolster psychosocial support even further!
The Max Cure Foundation’s Aggressive Research Mission and Continued Legacy of Support for Memorial Sloan Kettering Cancer Center
Almost ten years ago, Max Plotkin sat anxiously in a small exam room at Memorial Sloan Kettering Cancer Center while his parents, Chairman and co-founder David Plotkin and mother Annemarie Plotkin waited to find out why Max’s arm looked the way it did on the x-ray securely attached to the light board. When the dust settled, Max was treated at MSKCC for the rare diagnosis of B Cell Lymphoma of the bone. Max’s cancer was the first pediatric case of its kind at MSKCC, and thankfully to the amazing treatment team, Max is now a ten-year survivor. (more…)