Category: Trending Stories
Applying for Benefits for Pediatric Cancer
Introduction by Jonathan Agin, JD, Executive Director
As a childhood cancer nonprofit organization, the Max Cure Foundation (MCF) continually engages in the fight against this complex disease on multiple fronts. Since MCF’s inception, we have collectively funded over $960,000 for research purposes. Our team through, Richard Plotkin and Jonathan Agin, have effectively been engaged in working in Washington, DC to advocate for legislative and regulatory change. And finally, but certainly one of our most important charges, is our family assistance program known as Roar Beyond Barriers (RBB). (more…)
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Food Stamps Should Be Redeemable Online
As American shopping shifts from the brick-and-mortar stores to online retail, and even groceries have innovated for 21st Century consumers, agencies such as the USDA should reconsider how to best serve their constituents under their WIC and SNAP programs. (more…)
Author: Jonathan E. Agin, JD – Max Cure Foundation Executive Director
In a recent article written by Mathew Zachary entitled The End of Pediatric Cancer Research as We Know It, published on December 2, 2015, the argument is posed that as a society we overplay the death toll from childhood cancer in the United States and are not focusing on the bigger picture at this point: survivorship issues. Mr. Zachary, a young adult survivor of brain cancer, was diagnosed at age 21, and not in the pediatric age range of 0-19 years. He is the founder of Stupid Cancer. (more…)
As a result of my involvement as one of several members of the Coalition Against Childhood Cancer (CAC2) that played a significant role in saving the life of 7-year old Josh Hardy last March, I am continuing to receive the oft-stated “15 minutes of fame.” (more…)
Max Cure Foundation is privileged to have had Jonathan Agin join its ranks as of January 1, 2015. Jonathan and I are both involved with the Coalition Against Childhood Cancer (CAC2). (more…)
I recently introduced my friend Tom, who fought in Vietnam in the late 1960’s, as a former Marine. Tom immediately interrupted me and said, “I am not a former Marine, I am a Marine – there are no former Marines.” (more…)
I have seen the good and the bad in the entire debate and process of the issue of compassionate use, or expanded access. Many families who have children diagnosed with cancer without accepted protocols at one point or another find a drug that they believe would be of benefit to their child. It begins from desperation. A parent facing the unthinkable: the loss of their child. (more…)
I have already had the honor of being introduced to the Max Cure family by Vice-Chairman Richard Plotkin, accordingly I will spare everyone the details of my background, how I came to work with the Max Cure Foundation and what I will be doing. (more…)
Since our daughter Alexis’ diagnosis with DIPG, (diffuse intrinsic pontine glioma), in April 2008, my wife and I have witnessed tremendous acts of kindness and humanity from total strangers on many occasions. When Alexis passed away in January 2011, the outpouring from across the globe comforted us and assured us that Alexis touched so many. (more…)
For most people, the thought of your child being diagnosed with cancer is either too far removed from reality or simply a consideration beyond contemplation. With that being said, childhood cancer is in fact the number one cause of death by disease in the United States and not some far off concept. (more…)