Tag: pediatric cancer

Applying for Benefits for Pediatric Cancer

Introduction by Jonathan Agin, JD, Executive Director

As a childhood cancer nonprofit organization, the Max Cure Foundation (MCF) continually engages in the fight against this complex disease on multiple fronts.  Since MCF’s inception, we have collectively funded over $960,000 for research purposes.  Our team through, Richard Plotkin and Jonathan Agin, have effectively been engaged in working in Washington, DC to advocate for legislative and regulatory change.  And finally, but certainly one of our most important charges, is our family assistance program known as Roar Beyond Barriers (RBB).   (more…)

Author: Jonathan E. Agin, JD – Max Cure Foundation Executive Director

In a recent article written by Mathew Zachary entitled The End of Pediatric Cancer Research as We Know It, published on December 2, 2015, the argument is posed that as a society we overplay the death toll from childhood cancer in the United States and are not focusing on the bigger picture at this point: survivorship issues. Mr. Zachary, a young adult survivor of brain cancer, was diagnosed at age 21, and not in the pediatric age range of 0-19 years. He is the founder of Stupid Cancer(more…)

Jonathan Agin HeadshotI have already had the honor of being introduced to the Max Cure family by Vice-Chairman Richard Plotkin, accordingly I will spare everyone the details of my background, how I came to work with the Max Cure Foundation and what I will be doing. (more…)

#1 disease relatedFor most people, the thought of your child being diagnosed with cancer is either too far removed from reality or simply a consideration beyond contemplation. With that being said, childhood cancer is in fact the number one cause of death by disease in the United States and not some far off concept.  (more…)

IMG_1338Caleb was an ordinary toddler brought into this world by two loving parents. Caleb was born in September of 2011.  He was a happy and healthy boy with parents who loved him dearly. For the first 16 months of Caleb’s life, things seemed pretty normal, then one day his parents were told their bouncing baby boy had cancer. (more…)

On November 28th, runners and walkers across the country participated in the third annual Track Friday, a fitness-meets-fundraising movement held the day after Thanksgiving in which participants can support any charity, raise any amount, and run or walk any distance, anywhere. (more…)

As I look back on 2014, the 6th full year of operations since Max Cure Foundation (MCF) was formed in December, 2008, I am excited for its future and accomplishing my family’s dream in honor of my grandson, Max, a childhood cancer survivor, of making a significant and positive difference for children with cancer and their families.  At the same time, though, I question how to overcome what one person knowledgeable about pediatric cancer and other non-profit foundations recently told us, namely, “The Max Cure Foundation and what it is doing for kids with cancer is the countries best kept secret.”   (more…)

The Max Cure Foundation traveled to Tucson, Arizona on September 28th to support the Girl Scouts of Southern Arizona – Troop 26 as they official launch their Take Action Plan. Although these young ladies have been collecting sneakers for Max Cure’s Dunk Your Kicks campaign for three months, their official “kick-off” was this weekend. Every year, our Girl Scout Council hosts a “Thin Mint Sprint”, which is a 5K event whose proceeds help fund the scholarships which help other girls become Girl Scouts, as well as many council sponsored events through the year.

IMG_4071“As a new Brownie Troop leader in the Southern Arizona Region (Troop 26), I wanted to really try and provide my girls with a “girl led” experience, and also introduce them to the idea of impacting a world beyond their immediate view. Additionally, I was interested in helping the girls get prepared for working on their Bronze, Silver and, eventually, their Gold awards; the highest awards that Girl Scouting offers. All of these awards have a component of community service involved.” Stated Nicole Hopkins, the troop leader who also ran the 5k race today to show her support for The Girl Scouts and her Troop.

Rather than The Max Cure team managing the Dunk Your Kicks booth, the troop and a few fathers took on the responsibility while we watched with pride. Their goal is to collect 5,000 pair of sneakers in order to adopt a three families for six months into the Arizona Roar Beyond Barriers program.

IMG_4074Lion Max came out to join the fun at the Thin Mint Sprint, and even ran his very first 5k event! We have to give credit to Jason Piper, Jordan and Jaida’s Father, for wearing our Lion Max costume and running 3.1 miles in the Arizona heat in order to support the young ladies while raising awareness for pediatric cancer causes. His efforts and sacrifice goes to show the dedication of not only the young girls, but also their families, friends, neighbors and community.

Jayden giving medalsMax Cure Foundation’s youngest Dunk Your Kicks ambassador, Jayden, age six from Chandler, Arizona also made the trip. Waking up bright and early he asked his parents “is today the day we get to help kids with cancer?” Jayden had the important role of providing each of the Girl Scouts with a Max Cure Foundation Special Forces medal for their hard work and dedication while making a difference in the lives of children battling cancer. Jayden has been supporting The Max Cure Foundation since he was only four-years-old collecting over 100 pair of sneakers and even running a 4.25k to raise money for the foundation.

The Troop currently has donation locations at Zona Fitness at Rita Ranch, Platinum Fitness at Speedway Blvd and any Jim Click dealership. Their long-term goal is to reach out to other councils where Roar Beyond Boarders is established, using the video to recruit other troops. In addition, they are also trying to organize with U of A to have an end of the semester “dunk your kicks on the UA mall.” 

If you are in Tucson and would like to support the Troop’s efforts, email us here and we will get you in touch with Troop leader, Nicole Hopkins.

Last week was an eye opener for me as I travelled to Washington, DC, to attend several events in honor of Pediatric Cancer Awareness Month.  I say this because when I first got involved with the cause in 2007 after Max was diagnosed, there was relatively little attention given to childhood cancer – except of course if you happened to be among those with a child afflicted with the disease, a disease that strikes 15,780 children each year in this country and accounts each year for more deaths by disease in children than any other illness. (more…)

Today I am pleased to share news about an important animated film, Henry & Me, that I hope you will agree, can raise much needed awareness of the needs of pediatric cancers and also help raise funds for multiple charities, including two pediatric cancer organizations, The Max Cure Foundation and St. Jude’s Children’s Hospital. (more…)