On July 22nd and July 23rd 2015, CBI.net held an industry conference in Bethesda, Maryland, identified as “Expanded Access Programs.” In attendance were representatives from the pharmaceutical and biotech industries, health care providers, patient advocates, government personnel [FDA], and Max Cure Foundation’s, Vice Chairman, Richard Plotkin.
The Max Cure Foundation Blog
The Max Cure Foundation is honored to announce that leading pediatric cancer advocate, Jonathan Eric Agin, JD, has accepted the position of Executive Director as of September 1, 2015. (more…)
For some time, childhood cancer advocates have been seeking the appointment of a pediatric oncologist to the National Cancer Advisory Board (“NCAB”). (more…)
Over the past year, The Max Cure Foundation has had the honor of working very closely with The Girl Scouts of Southern Arizona, Troop 26 on their Take Action program. (more…)
New Treatments & Better Drugs for Childhood Cancer
In July, 2012, President Obama signed into law the Creating Hope Act for the purpose of incentivizing pharmaceutical companies, biotech firms and universities in seeking cures for what are known as Rare Children’s Diseases. Childhood Cancer is considered such a Rare Children’s Disease. (more…)
The Max Cure Foundation recently received a request to start a Dunk Your Kicks collection from 10th grader, Leah Glucksman, in Scarsdale, NY. (more…)
As a trial lawyer for 40 years until my retirement a few years back to form The Max Cure Foundation, I was involved in thousands of cases – some I won, some I lost and most were settled.
As a result of my involvement as one of several members of the Coalition Against Childhood Cancer (CAC2) that played a significant role in saving the life of 7-year old Josh Hardy last March, I am continuing to receive the oft-stated “15 minutes of fame.” (more…)
Max Cure Foundation is privileged to have had Jonathan Agin join its ranks as of January 1, 2015. Jonathan and I are both involved with the Coalition Against Childhood Cancer (CAC2). (more…)
I recently introduced my friend Tom, who fought in Vietnam in the late 1960’s, as a former Marine. Tom immediately interrupted me and said, “I am not a former Marine, I am a Marine – there are no former Marines.” (more…)
I have seen the good and the bad in the entire debate and process of the issue of compassionate use, or expanded access. Many families who have children diagnosed with cancer without accepted protocols at one point or another find a drug that they believe would be of benefit to their child. It begins from desperation. A parent facing the unthinkable: the loss of their child. (more…)
In December of 2014, Noah Easterday was a normal, happy 17-month-old little boy until his parents noticed something wasn’t right. Suddenly, little Noah lost his appetite. Like most parents, his Mom and Dad initially thought was simply a phase he was going through. (more…)
I have already had the honor of being introduced to the Max Cure family by Vice-Chairman Richard Plotkin, accordingly I will spare everyone the details of my background, how I came to work with the Max Cure Foundation and what I will be doing. (more…)
Since our daughter Alexis’ diagnosis with DIPG, (diffuse intrinsic pontine glioma), in April 2008, my wife and I have witnessed tremendous acts of kindness and humanity from total strangers on many occasions. When Alexis passed away in January 2011, the outpouring from across the globe comforted us and assured us that Alexis touched so many. (more…)
For most people, the thought of your child being diagnosed with cancer is either too far removed from reality or simply a consideration beyond contemplation. With that being said, childhood cancer is in fact the number one cause of death by disease in the United States and not some far off concept. (more…)
Caleb was an ordinary toddler brought into this world by two loving parents. Caleb was born in September of 2011. He was a happy and healthy boy with parents who loved him dearly. For the first 16 months of Caleb’s life, things seemed pretty normal, then one day his parents were told their bouncing baby boy had cancer. (more…)
I want to introduce our followers to Jonathan Agin who joined The Max Cure Foundation (MCF) as of January 1, 2015. I met Jonathan as a result of our being members of the Coalition Against Childhood Cancer (CAC2). I am a member as a result of MCF being one of about 74 pediatric cancer foundations, which are members, and Jonathan is one of 23 individual advocates. We are both attorneys trained to advocate for our clients. We also are both involved in advocating for children with cancer and their families, each of us having been directly affected by pediatric cancer. (more…)
For the second year in a row, The Max Cure Foundation was invited to have a highly coveted window display in Rockefeller Center thanks to EHE International. Last year, Max Cure Foundation was selected as the children’s foundation out of 500 applicants, and the EHE International team was so moved by our display that they decided to honor the foundation again this December. (more…)
On November 28th, runners and walkers across the country participated in the third annual Track Friday, a fitness-meets-fundraising movement held the day after Thanksgiving in which participants can support any charity, raise any amount, and run or walk any distance, anywhere. (more…)
As I look back on 2014, the 6th full year of operations since Max Cure Foundation (MCF) was formed in December, 2008, I am excited for its future and accomplishing my family’s dream in honor of my grandson, Max, a childhood cancer survivor, of making a significant and positive difference for children with cancer and their families. At the same time, though, I question how to overcome what one person knowledgeable about pediatric cancer and other non-profit foundations recently told us, namely, “The Max Cure Foundation and what it is doing for kids with cancer is the countries best kept secret.” (more…)